Connecting with others, including other patients
Connecting with others
You might feel self-conscious,2 miss out on social activities3 or have to take time off work because of your psoriasis.4
Whether you have psoriasis or are supporting someone who does, there are things you can do to improve your personal or professional relationships.
Personal relationships5
Psoriasis can affect relationships with your friends, family or romantic partner.
If you have Pso
Do things in your own time6
New relationships are exciting, but may also be stressful at times. Stress can trigger flare-ups,1 so try to take things at a pace you’re comfortable with and explain your psoriasis to others.
Communication is key7
Your family, friends or partner may be unfamiliar with psoriasis, so talk to them about how it affects you and what support you may need, and encourage them to read What is Pso.
Be open about your insecurities and internal battles1
Sometimes it may feel easier to hide difficult feelings, but consider opening up about how you feel about yourself, both physically and mentally. You may find a support group local to you through EUROPSO, the European patient psoriasis website.
Find a way to boost your happiness1
Try to find an activity that you enjoy to help you destress and increase the levels of feel-good chemicals, called endorphins, in your brain.1
Find a way to make things work for you89
There may be times when you need help from others,8 e.g. if a flare-up leaves you feeling too tired to do as many things as usual,10 so you may need support from friends or family.
If you’re in a relationship and in the middle of a flare-up, sex may be the last thing on your mind. Find other ways of being romantic, like watching a film or cooking dinner together, or if you want to be intimate, do what you need to make yourself comfortable. Whether that’s reassuring your partner that it isn’t an infection, particularly if it’s around your groin area,9 turning the lights off, keeping your clothes on, or carefully selecting the colour of your bedsheets.
If you have a personal relationship with someone who has Pso
Don’t force the conversation5
You might have questions about psoriasis, but be patient and considerate in the way you ask and talk about it, and never push for answers. Take time to educate yourself in preparation for those conversations.
Don’t take it personally359
If your loved one withdraws from you, avoids socialising or cancels plans, try to understand that they’re probably not rejecting you and is likely to be a result of how they feel about themselves.359 This can be frustrating, but flare-ups could leave them feeling very uncomfortable11 and tired,10 or they may even feel embarrassed about their skin.12 Be patient and give them space if they need it, or suggest an alternative plan.
Don’t dismiss their feelings5
It can be tempting to try and ‘cheer up’ someone who is feeling depressed or anxious about their Pso, but it may have the opposite effect. Pso can have an impact on mental health,5 and stress can trigger psoriasis symptoms.5 Read about psoriasis and mental health, and discover stress-busting tips. It’s also a good idea to encourage your loved one to talk about their feelings with their doctor, in case they need additional support.5
Offer your support5
Psoriasis can take a toll on the body11 and there may be times where your loved one needs your support. This could be as simple as helping with household chores during a flare-up. It might also be useful to take a look at top psoriasis tips, from people who know what it’s like, or to read stories of how others have coped with the condition.
For some people, doctors’ appointments can be daunting so think about offering to support your loved one with this, or even going with. Discover tips to help your loved one make their consultations work for them, including those specific to virtual appointments via a phone or computer.
Professional relationships13
If you have Pso
Consider being open about your needs at work13
While you’re not legally obliged to tell anyone you work with about your condition, you might prefer to share some information with your manager or human resources team if you feel it could affect your work at some point.13 Sharing some details could help your colleagues understand your needs and make adjustments to make your life at work a little easier.13
Prioritise self-care13
Stress can make Pso worse for some,14 so it’s important to take self-care seriously and plan ways to switch off and relax during stressful work periods.13 ‘Self-care’ means different things to different people, but it could include meditation, reading a book, listening to podcasts or taking a walk.
Create a healthy work environment13
Arrange your work area in a way that minimises the impact of what you’re doing on your psoriasis,13 for example getting ergonomic support, or varying your activities to avoid sitting in one position or repeating an action for too long.13
If you manage someone who has Pso
Have a conversation if Pso impacts their work13
If the condition is affecting your employee’s work performance, gently talk about what measures might help them become more productive.13
Understand they may overdo it at times13
If your employee is worried about how people at work may view them, be aware that they may try to overcompensate, which could lead to exhaustion.13 Reassure them that while they do need to meet their work commitments, they shouldn’t go overboard.13
Be accommodating of their schedule13
If your employee with psoriasis needs to attend regular medical appointments, try to support them with a flexible working arrangement, or the ability to work from home, if suitable.13
Understand that they are more than their Pso13
Everyone has off-days, including people with psoriasis.13 Always focus on their performance at work, rather than their condition.13
Your relationship with your doctor
Be honest with your doctor
It’s important to let your healthcare professional know how you’re really feeling to ensure you’re on the right treatment for you, so that your Pso doesn’t get in the way of you living your life exactly as you choose.15 Don’t be afraid to explain exactly what support you need and what you’re hoping for from your treatment, so that you can discuss what’s possible and what options are available to you. It may help to make notes on this before your appointment, so you have something to refer to. Take a look at our tips to help you get the most from consultations by having a productive conversation during your next appointment.
TOP TIP
“I used to let psoriasis stop me from going about my life, but I refuse to let it get in the way anymore.”*
Ways to help you open up about your Pso
Talking about your Pso with others may be daunting but it could make you feel free and boost your confidence. It can also help you get the support you need. The following may be helpful to start that conversation:
- Choose how you want to open up to others,16 such as email or face-to-face
- Decide on a time16 when neither you nor the other person are busy
- Stick to the facts16 about ‘What is Pso?’; ‘What causes Pso?’ and ‘What does Pso feel like?’, and share with others to help answer their questions
- Ask for support,16 e.g. devices to make your workspace more comfortable or protected time for scheduled skincare routines to keep your skin moisturised, or for students, extra support to get back into studies after time off or private space to change for sports - think about what it is that you need
- Have an objective in mind16 – do you need them to understand what you need, why you may feel down, why you sometimes can’t socialise, or something different?
Take a look at the EUROPSO patient psoriasis website to find a support group local to you
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Não existe um tratamento para a psoríase que funcione para todos, o seu médico pode ajudar.
Faça com que todos os momentos da consulta contem.
Sabemos que nem sempre pode ser preciso consultar o seu médico de forma presencial.